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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
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@parkerjean

I am 71 yrs young and I have lived with PN for over 10 yrs. I visited Mayo in Jacksonville in 2011. I was seen by a Neurologist and had several tests, especially for MSA. The majority of the test returned normal except Sweat test, balance and body response to other stimuli. I have digestive problems, constipation and/or diarrhea. I have pins and needles over most of my body and head. The Dr. said I had a slight sign of Parkinsonism. I take pregabalin (Lyrica) for pain. The Doctor told me that HEAT and Alcohol were my two worst enemies. Anyone else???

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Replies to "I am 71 yrs young and I have lived with PN for over 10 yrs. I..."
John, Volunteer Mentor | @johnbishop | Jan 12, 2022

Welcome @parkerjean, I see you recently joined Connect and have posted about an aneurism next to a valve which makes surgery a risk and that you also are dealing with chronic kidney disease along with your peripheral neuropathy and other health conditions. I can't begin to imagine how hard it is for you to manage daily routines. After I was diagnosed with small fiber PN and started learning more about my condition, alcohol is one of the first things I gave up after reading that it can make neuropathy worse. I'm wondering if the heat depends on what type of neuropathy you have and what is affected.

Did your doctor tell you specifically why the heat and alcohol were your two worse enemies?

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