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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Welcome, @rvan. Have you been diagnosed with MAC or do you suspect you might have it?
Replies to "Welcome, @rvan. Have you been diagnosed with MAC or do you suspect you might have it?"
Colleen I’ve been diagnosed with MAC
colleen sorry I'm new to this forum not even sure I responded to you but I'm new to this Mac I found out few weeks ago. however I'm on ARIKAYCE.Only 9 days on the medication however I lost my voice its so frustrating I cried just this morning because my dr told me I have to be on the nebulizer with arikaye for 12-18 months and I haven't a clue if I will ever get my voice back and I'm scared. I know I hear about Stepfen lozenges however I'm going to call today to see if I am allowed to take them and if it will help I'm praying I don't go 18 months with no voice omg I can't thank you for listening to me
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I suspect I might , will know better after a bronchoscope in the new year 🙁