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@jr2366

Hi Irene so I saw a pulmonologist since last December I was sick with pneumonia I then took several rounds of Antiobiotics predisone and several xrays Cat scans pet scans lung biopsy and even bronchoscopy at Sloan In August all in one year ugggh to see why my scans were coming back as something was inflamed inside lung and I had a nodule that’s was Little larger than 1st few scans . I’ve done it all they determined it is Mac, so I took all my scans to a pulmonologist where I live and he read my scans and paperwork and said I need to be on arikayce for 12-18 months so I’m on this for 3 days now I have a ways to go . I also have lung pain right side I told my dr that as well, he said yes that can happen Irene please get back to me thanks you’ve been helpful to me I feel alone in this but now I see there’s others. Thanks Irene

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Replies to "Hi Irene so I saw a pulmonologist since last December I was sick with pneumonia I..."

JR , what were your symptoms prior to your diagnosis ?

@jr2366 You are never alone with this group Jennifer! Lung nodules with nodular MAC are common and a sign of inflammation. The Arikayce plus the BIg 3 ( 2 in my case) has resolved my largest nodule. Irene