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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Thank you so much I was just told filtered water from my refrigerator is good as long as you change the filter and I wash my vegetables with boiled water. I also was told to clean my shower head with with bleach or vinegar. And if you’re cannot remove it put a bag around it with the liquid in it . I’m so new to all this I’m trying to learn this as I go along. Let’s keep in touch we will learn from each other . I take Arikayce everyday through a mini nebulizer. I have to do this for 1 year to 18 months , Not happy about this I only started 3 days ago but I have to in order to get rid of this MAC thanks so much for your input Jennifer
Replies to "Thank you so much I was just told filtered water from my refrigerator is good as..."
@jr2366 Hi Jennifer, about the filtered water from fridge. There was a discussion on here a while back about this with research articles that state, filtered water from fridge is NOT safe, no matter how much you change your filters. I’m sorry I don’t know how to go back and find it, maybe someone else can jump in who remembers. Because the fridge holds water in the line close to the motor which keeps it at an optimum temperature to colonize.
Also, the filters have to be able to filter to .2 micros, (I think). The discussion also included water coolers and coffee makers like Keureg and such. I hope other members who remember this discussion will add to this post.
Perhaps things have changed in the past 4 years and I haven’t kept up to date.
Gina
Hi Jennifer, I just found this great article on MAC and reducing exposure. It sites some of the things you talk about. I found this very eye opening. https://www.atsjournals.org/doi/full/10.1513/AnnalsATS.201301-013FR
Take care and good luck. Carolyn
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@jr2366..Hi there...please be careful drinking water from your fridge..it holds slot of MAC bacteria, including Absessus..if you are filtering make sure you have a 0.2 micron filter attached..I’d still be nervous to drink water from my fridge