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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)Comment receiving replies
Replies to "Hi Joni, Hope you were able to get more of your questions answered during your zoom..."
Thank you Lenora,
I have been trying to find a site where we could ask questions to people who actually have tis disease and I am so happy to have found you. We do need a back MRI as our Dr. said he should not have this amount of pain from the cancer. We need to get C/T scan results as well to see what if any the tumor's play a part in this. I almost felt like she was saying there should not be alot of pain associated with this cancer? What do find on the subject of pain and the patient's you talk to? It was also hard to hear as she had a mask on! She said perhaps the treatment might have to be changed, I have seen the targeted chemo/radiation and was wondering how people do with that? I know it is hard because it seems to affect every person differently. We are learning as we go but want to thank you again as so far we find your site to have a fantastic amount of info. on many different things, I wish we found you earlier. Again thank you and God Bless. Big prayers for all the warriors still in this fight! I am a 3x survivor and I always say, glove up, get in the ring and start to swing before the bell rings! Big hugs to you and everyone affected by this, have a beautiful day!
Joni and Anthony