@jr2366 welcome to this knowledgeable and caring group. I am sorry you were diagnosed with MAC but glad you found Mayo Connect. I don’t know much, but I know Arikayce is taken after other treatments didn’t work or the patient was unable to tolerate the Big 3 as the medications are called. Arikayce requires training with a nurse and is very expensive. I have never heard of someone being “ put” on Arikayce. It’s a big deal! I had to fill out paperwork with my ID doctor and be ok’d by the company for the trial. And then I had to be be trained virtually by a nurse on how to use it. You said your doctor “put” you on it. Are you seeing an ID doctor? I read your posting like four times to make sure I read it correctly. When I was first diagnosed with MAC I went to a pulmonologist and then an infectious disease doctor. I am perplexed. Do you have symptoms? Again- welcome. You will find lots of answers here. irene5

Hi Jennifer, I will repeat Irene's welcome to Mayo Connect. We are a community of people living with a great variety of conditions. We share our experiences and help each other along the way. We are not medical professionals, and do not give medical advice, but do talk about our challenges and successes.

I agree with Irene that it sounds unusual to begin treatment with Arikayce, can you please tell us about your symptoms, how you were diagnosed and what the doctor told you about this treatment?
Sue

@jr2366 dear Jennifer, welcomeon this sight! We all have our own experience! It would be a good thing if you can share with us your symptoms and if you had any other lung problem before. It would be easier to share our experience with you. I wll keep you in my prayer! Nic!