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@windwalker

Hello @anniepie. Was wondering how your pulmonology appt went?

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Replies to "Hello @anniepie. Was wondering how your pulmonology appt went?"

Hi Terri @windwalker. I'm back now. (Sorry I haven't been online for a while. Fell off the horse -- as they say -- but I'm trying to ride again!) The Pulmonologist had me start back on the drugs at a lower dose at the moment. Unfortunately nearly all the TB / NTM drugs can cause long QT heart problems in susceptible people. And my Cardiologist says it's inevitable I will get long QT from the drugs again. So my primary care doctor is now monitoring my EKG every week. It has been a very tense time for me. (Should I continue with the drugs when I have refractory NTM now anyway, and these drugs could make my heart stop at any time???).

I am taking the drugs but having a few days off for Christmas!

What a year! Hope everything is okay for you -- please take care
Love from Annie x