I have read the account of this lady numeous times. God Love Her and her family. My Neuro team is in Fort Myers where I live. My daughter tried to reach out to all of the Mayo locations in the country. Everyone she spoke with said the same thing.... Waiting time to be seen could be over a year!! They all are just too busy!!! So here I sit just waiting as have no idea how long I have had this. Lewey body also has shown up and dealing with that also.... Guess it is just in the Master Plan of life. I do take meds for anxiety to help in dealing with this. Gets better.. tried to contact 3 different brain centers to donate my body for research and was denied by all 3!!! They want my brain but only my brain as an autopsy and donation of other much needed organs is prohibited as there may be diseased tissue frrom this horrible disease. No driving..working.. all I hear is about what I CAN'T do and not what I can do. Yes I do fall alot due to my balance, shaking and sometimes tremors, but I AM NOT GONE FROM THIS WORLD YET!!!! Take it one day at a time. Thanks for listening. I really hope no one replies as NO ONE on earth should have this disease and if so.... God bless you and your families.