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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Hi Pam and Irene I just wanted to be sure that you and others know that there is a side effect of arikayce that can affect the kidneys and I had that and my creatinine went up to 1.53 —too high! I had to go off of arikayce. Bad because I thought that it was helping me and that was a good thing that’s about the only thing that’s affected adversely so far in my journey with Mac and obsesses. I just want to be sure you all knew this so that you were being monitored at least once/ month. Blessings Judy
Replies to "Hi Pam and Irene I just wanted to be sure that you and others know that..."
thank you everyone for your thoughts about night sweats....all the blood work done in the last two weeks has ruled out anything serious (thank goodness!), so I have to assume that this is related to my lungs and perhaps an infection of some sort (though I feel fine). So far the recent sputum samples show nothing but I am waiting on getting results for MAC (which takes weeks). I will pursue the CT scan and/or xray as well. If the MAC has returned ( have now been free of that since 2017) I will have to decide what "route" to take; the Aricayce seems a little tricky concerning liver issues. Thank you so much for your support! Pam
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@judyhodgern Thank you for the reminder. I have a UMASS appointment today and will mention that along with other questions. I do get monthly bloodwork which, so far, is ok. Thank you. Irene