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@mountainsueh

Recently with crutzfeldt-jacob brain disease. Is there anyone out there who can identify with what I am going through. 67 yr female living in Florida. I am aware what I am up against no cure. Started seeing objects that arent there.. sleep disturbances.. severe anxiety. Have wonderful Neuro teeam here. But i always hope that maybe there will be a cure someday.

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Replies to "Recently with crutzfeldt-jacob brain disease. Is there anyone out there who can identify with what I..."

Welcome @mountainsueh, I can't begin to imagine or identify how difficult it must be for you. While we wait for other members who may be able to share more information or experience with Creutzfeldt-Jakob disease (CJD), I thought you might like to read this Mayo Clinic patient experience.

Back from the brink and looking forward: Karen Detweiler overcomes rare neurologic disorder:
-- https://sharing.mayoclinic.org/2021/06/22/back-from-the-brink-and-looking-forward-karen-detweiler-overcomes-rare-neurologic-disorder/

It's good to hear you have a wonderful Neuro team. Are they part of Mayo Clinic Jacksonville?