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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@pamelasc1 I am sorry you are experiencing these symptoms. Notwithstanding the possibility of hormone issues of menopause I will tell you that yes I have had night sweats and other constitutional symptoms happen due to my MAC and bronchiectasis diagnosis. Since being on the MAC meds plus Arikayce this has become a nonissue. Hoping your doctor can get some answers for you. irene5
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Thank you Irene for this info - can you tell me about your use of Arikayce? Do you take it daily or only when you get sick with pneumonias? I did go on the 18 month regimen for MAC once it was diagnosed back in 2015. That cleared the MAC but since then I continue to get periodic cases of bacteria (pseudemonas) in my lungs which bring back a bad cough and feeling sick. I took Levofloaxin for that and it always cleared it up. But now I can't take that anymore, due to side affects. So I am looking for a new drug to try if and when I get another bacterial infection. Perhaps the night sweats are telling me that the MAC is coming back, but I do not have that strong and persistent and productive cough that the MAC caused me 5 years ago. Were your night sweats happening, even when you felt fine? Pam