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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

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@erin2288

Thank you all for the quick responses. This will be very helpful for my appointment with my neurologist this week.

@johnbishop, I appreciate the warm welcome. To answer your question, I am on a waitlist for an NIH study on people who developed severe reactions after the COVID vaccine. My mother and I both developed neuropathy after the mRNA vaccines, and I have now tested positive for the TS-HDS antibodies as well as other autoimmune antibodies for thyroid disease and lupus. If anyone else has had a similar experience, you can contact Angelique Gavin, NIH/NINDS Clinical Operations Manager, to request to be part of this study.

From Angelique:
"We are currently developing an online survey system to collect stories about people’s complications after receiving COVID vaccines. At this time, if you are willing, we can take your name and contact information. We will reach back out to you when the survey system is completed to see if you are willing to volunteer in our on-line study."

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Replies to "Thank you all for the quick responses. This will be very helpful for my appointment with..."

Erin, Thanks for sharing this information. Hoping this will provide a lot of data and help in the not so distant future.

Hi Erin, Would you mind post a link to the NIH study? Are they still recruiting people to participate in the study?

I would be interested as my long covid symptoms started 2 month after the booster.