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d13 (@d13)

Primary Progressive Aphasia

Brain & Nervous System | Last Active: Jan 10 6:40pm | Replies (4)

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@d13

Whoever put the go fund me page; said he expressed wanting to be able to be around longer with his grand children and family. I just read that he has had this disease for at least ten years and has a feeding tube and can’t speak. Has lost 60 pounds. He was seen by many neurologists. If he doesn’t have the primary progressive Aphasia; then it also stated that he might be diagnosed with having Corticobasal Degeneration. So I’m not sure as to the reason for going. It’s just sad to hear that he is going through this and the family. The Mayo Clinic sounds like they are giving him some kind of hope to at least extend his life.

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Replies to "Whoever put the go fund me page; said he expressed wanting to be able to be..."

@d13

It sounds like the family wants to do everything they can to help him. As you learn more about this, will you post updates?

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