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@sueinmn

A number of people in this group have not been treated for their MAC with antibiotics. My pulmonologist says she never treats MAC based on sputum cultures alone - she looks for infection evidence in the lungs plus other symptoms (coughing, fatigue, weight loss), before beginning treatment. She also considers the total physical condition of each person, because not everyone can tolerate the 3 antibiotic regimen. I also see that you have COPD, which may affect how you would be treated.
Right now, I (probably) still have the infection, but no symptoms. In consultation with my 3 docs, we stopped the antibiotics last December based on an improved lung scan, even though the cultures were positive. I have maintained all year with 7% saline nebs & airway clearance. The Infectious Disease doc consulted with NJH before stopping. He said that, in his experience, a fair number of people have MAC for years, and you can "knock down" the level of infection with drugs, but it never really goes away. The best you can do is healthy eating/living and good lung hygiene. Sometimes it flares up and you treat it again.
Sue

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Replies to "A number of people in this group have not been treated for their MAC with antibiotics...."

@janrn1 when l was evaluated at NJH 3 plus years ago.....they said to treat they would want 2 positive sputum cultures....l had one from a bronchoscopy and remainder were negative after 2 months....and bronchiectasis on my CAT scan...did not show any. also ...l am adding this...did not have weight loss....fevers...chills. So they felt the MAC that was found was from aspiration into lungs from water source here in SE wisconsin where we are one of the hot beds for NTM according to the AMerican Thoracic Society.
i go every there every year for evaluation...
the Local ID was all set then to start me on the 3 antibiotics based on one culture nothing else. tdrell

Thanks @sueinmn for this information -- it's really helped me. Hugs and good luck, Annie