Thanks Terri and thanks so much everyone else.

Yes I will try to get onto Arikayce -- that was planned anyway for a few months time. But I think I will have to take something else as well.
I might go back on the Ethambutol. (Still scared a bit every time I take it. But the heart problems that happened with the Macrolides -- Azithromycin and Clarithromycin -- and with Clofazimine freaked me out).

Has anyone ever tried Bedaquiline??? It's a TB drug but in more recent studies it appears also to work with MAC and with Intracellulare in particular.

You're all so kind -- I can't thank you all enough for being there for me.
Virtual hugs, Annie x