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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Anniepie, I am with Irene on this, perhaps ask your dr about Arikayce. There are quite a few of our members here that have gone on that med with success. Please keep me in the loop as to what your dr has to say about it.
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Thanks Terri and thanks so much everyone else.
Yes I will try to get onto Arikayce -- that was planned anyway for a few months time. But I think I will have to take something else as well.
I might go back on the Ethambutol. (Still scared a bit every time I take it. But the heart problems that happened with the Macrolides -- Azithromycin and Clarithromycin -- and with Clofazimine freaked me out).
Has anyone ever tried Bedaquiline??? It's a TB drug but in more recent studies it appears also to work with MAC and with Intracellulare in particular.
You're all so kind -- I can't thank you all enough for being there for me.
Virtual hugs, Annie x