@anniepie I am so sorry you are dealing with these other health issues arising from the meds. That is a problem with MAC/MAI. It is difficult to get rid of for many of us, and the drugs to accomplish that are harsh. The suggestion I will make is to talk to your ID doctor about Arikayce. It is inhaled and, therefore, goes directly to your lungs. It is for people like you and others who have not responded to conventional treatment or can’t tolerate the other meds alone. It is worth asking about. irene5

Anniepie, I am with Irene on this, perhaps ask your dr about Arikayce. There are quite a few of our members here that have gone on that med with success. Please keep me in the loop as to what your dr has to say about it.

I'm sorry you had to stop the meds after working so hard to get rid of the MAC, but there is hope. If you are still symptomatic, I suggest you do ask about Arikayce as suggested. I also had to stop the meds due to side effects while still positive last winter, but I no longer had symptoms. So using 7% saline nebs and airway clearance seems to have kept me on a decent track. I also use "Breathe Easy" tea every day to help keep my lungs clear, nebulize levalbuterol when short of breath, and do daily exercises and walking to keep my lungs strong.
Good luck in finding a regimen that will work for you.
Sue