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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@windwalker

Yes, Beth, the tea is made by Traditional Medicines. I am so sorry that you had a tough night. I think we can all relate to that. Was there a specific symptom that kept you awake?

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Replies to "Yes, Beth, the tea is made by Traditional Medicines. I am so sorry that you had..."
Beth Kiefer | @mrf5629 | Sep 13, 2020

Thank yoy!

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anniepie | @anniepie | Oct 14, 2020

Dear friends, can somebody help me with advice ?
Unfortunately I had to stop all my TB meds today. I've developed rapidly worsening Long QT (now in the 'severe' range) and Hypokalemia from the Azithromycin and Clofazimine.
I tried so hard to be a very compliant patient over the past 2 years, but have to stop now even though I still haven't got rid of the MAI. I just can't seem to make it to the finish line!
Has anyone else gone through this ? Do you have any advice for me ?
This site has been quiet for a while, but I think of you all, and I hope somebody can help me and all of us
Anniepie x

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