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@colleenyoung

Lucy, I'm disappointed that lung rehab didn't work. You'd think it would help wouldn't you?

Post-COVID clinics everywhere are experiencing more demand than they can handle, this includes Mayo Clinic unfortunately. The magnitude of the population that needs help is mind boggling and the same experts are also caring for patients admitted with acute COVID as well.

I know it's a far second best, but I hope that the knowledge and experience members share here and on the expert blog (https://connect.mayoclinic.org/blog/post-covid-recovery/) will be a stop gap until people can get into a clinic.

Let's continue to share what helps. Your mention of "you don't look sick" and carefully managing the energy you do have reminded me of this discussion. I think it may have some ideas people with post-COVID syndrome will appreciate.

- How do you plan your day and conserve energy? Are you a Spoonie? https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/

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Replies to "Lucy, I'm disappointed that lung rehab didn't work. You'd think it would help wouldn't you? Post-COVID..."

Thank you for your suggestions. I did go to the blog and got some good information to share with my PCP. I do try to plan my days based on "have to dos" and "want to dos". My caring husband obnoxiously reminds me when I'm doing too much.

I was just referred to a therapist to explore Vagus Nerve Stimulation for Long Covid. Apparently, it's done in Canada with some success. Have you heard anything about it? Currently, I am suffering from lower back pain which is making my exercise routine more than a little difficult. Nothing is easy these days but I remain hopeful!! Thanks, Lucy