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Hereditary and one sided Acoustic Neuroma

Brain Tumor | Last Active: Jan 16, 2022 | Replies (6)

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@colleenyoung

"The cause of acoustic neuromas can be linked to a problem with a gene on chromosome 22. Normally, this gene produces a tumor suppressor protein that helps control the growth of Schwann cells covering the nerves.

Experts don't know what causes this problem with the gene. In most cases of acoustic neuroma, there is no known cause. This faulty gene is also inherited in neurofibromatosis type 2, a rare disorder that usually involves the growth of tumors on the hearing and balance nerves on both sides of your head (bilateral vestibular schwannomas).

Neurofibromatosis type 2 only accounts for about 5% of acoustic neuroma cases." Read more here:
- Acoustic neuroma https://www.mayoclinic.org/diseases-conditions/acoustic-neuroma/symptoms-causes/syc-20356127

@kathp, do you know if your family members had NF2?

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Replies to ""The cause of acoustic neuromas can be linked to a problem with a gene on chromosome..."

I believe they tested my husband for NF2 at the time of his surgery and he was negative. But now that his cousin has had one also, I was just wondering if there was something else that could be causing a hereditary link.