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RSD/CRPS

Brain & Nervous System | Last Active: Sep 25 9:25pm | Replies (121)

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@rivermaya34

Haha yeah, I definitely stay busy. I'm a pretty ambitious individual, which can be unfortunate for my health at times. But, serving others and keeping physically active (within reason) keeps me out of trouble and feeling human. It also maintains my perspective and allows for me to reach and encourage others along the way. I'm sooooo thankful for that! All of the above vocabulary above you used to describe me are undeniably accurate lol and like you say, "takes one to know one." 🙂 I'm so sorry you have been suffering with such enormous pain and frustrations, but I am exceedingly thankful that you have crossed my path here. Your story has encouraged me more than you know, and for that I am ETERNALLY thankful!!! Yes, I agree with your assumptions in that I believe the program would greatly benefit me, and I intend to seek it out. I'll be talking with my doctors this upcoming week and see what they say, they are super supportive and proactive. I was almost in tears watching the video link, I'm pretty sure my mouth was wide open in disbelief that someone could pinpoint so exact all of the grievances I've (and so many others) been experiencing without solid answer or people looking at me with crazy stares etc. It all makes so much sense now...I feel even more hopeful now because I have information to now share with friends and family to educate and encourage them also. THANK YOU. You are a wonderful human being.

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Replies to "Haha yeah, I definitely stay busy. I'm a pretty ambitious individual, which can be unfortunate for..."

@rivermaya34 Thank you for your empathy and kind words. You are a kind, giving soul. I can't tell you what it means to me to be able to share the video from Dr. Sletten and have it make such a profound impact on someone who is looking for help and hope. I am ecstatic for you! You almost verbatim said what I said after watching and breaking down in tears. It's powerful when someone gets you, brings validation, AND offers a plan of action. You are so welcome!!! Good luck with your doctors this week. Let me know if I can answer any questions or help in any way. I'm always hanging around these neck of the woods.