← Return to Lung Cancer Support Group: Looking for support from others

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@marshall8318

I join a once a month Zoom lung cancer support group through John Stoddard in Des Moines hosted by a Clinical Oncology Social Worker. Being able to talk to others about their updates, issues, etc. has helped me so much. We are able to help each other and support each other. The social worker arranges for guests if we have special concerns. She had a dietitian one month who answered a lot of our questions. I’m not much of a text, email, social media person so talking on Zoom has been a huge support to me. When I saw there were groups for other cancers through Mayo I wanted to make sure I wasn’t missing out on one for lung cancer.

Similar to @carlies I am very interested in help with diet, probiotics, and especially the latest research on the micro biome and cancer. During treatment I know you had to be very careful what to take not to interfere with chemo and radiation so for @carlies it may be different than what I need to do now after those treatments.

Merry, I’ve been hanging in there. Been suffering from repeated infections so have been on 4 rounds of antibiotics and ended in the ER with an allergic reaction to one. Went to an integrated MD and he is helping me with getting my immune system up and improve my gut health from chemo and all the antibiotics. Just had scans January 4th. They were a huge stress relief as previous scans had shown 5 new micro nodules but this scan they were gone. I do have another hydropneumothorax but overall the scans were great news. Thanks for asking.

I haven’t kept up with posts lately. How are you doing?

Juliette

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Replies to "I join a once a month Zoom lung cancer support group through John Stoddard in Des..."

I just got a CT result and have to wait to speak with my team before I understand some of the confusing wording. I'll let you know.

I'm going to check out John Stoddard. How did you select this one?

Terri Wahls has written a lot about the microbiome, even though her issue is MS. She also has a good cookbook. I found both in the library. If you follow her on FB, there are plenty of free podcasts.