← Return to Stomach and digestive health

Discussion

Stomach and digestive health

Digestive Health | Last Active: Jul 5, 2023 | Replies (16)

Comment receiving replies
@helpmepls

hope less… heathy 30 yr old male
an infection started In the lg intestines causing two fistulas to bury though the anal muscles cause two external abscesses to burst which now leaks puss and fecal matter all the time.
Which would be treatable except for the ulcers that were found during the colonoscopy which have been biopsied awaiting results but doc says most likely crohn disease
Therefore he doesn’t want to treat the two fistulas due to complications with the underlining disease
Highly likely to cause Incontinence
Extremely painful bm extremely restricted diet and no hope …

Jump to this post


Replies to "hope less… heathy 30 yr old male an infection started In the lg intestines causing two..."

Try to hang in there man,digestive issues can be horrible, nobody understands this unless they have them. Tell your doctor the hopelessness you feel, Hopefully he or she can give you some positive hope .

I have fistulating Crohn's disease. I have had it for almost 40 years. The new Biologics will help you considerable once they figure out the cause. They might also put you on a brief course of high Steriods - Prednisone. That will lower inflammation. Diet should be bland and alkaline if possible. One thing that helps make things more alkaline is sodium bicarb. I take this for kidney disease, a side effect from losing so much of my gut. I use about 3/4 tsp in a about 5 ounces of fruit juice and drink it. Lemon water is surprisingly alkaline in the body though you would think it is acidic. Check out some books of Crohns diets. You can try the Fodmap - which eliminates foods that can cause more inflammation. Then you add one food back at a time.
For starters, try eliminating all onion and all garlic (it is hard), and do not buy any processed foods. Make everything from scratch and make it simple.

Most exciting, at Johns Hopkins right now, they are using a gel containing stem cells that they can insert into a fistula to heal the fistula without surgery. The gel helps to keep the stem cells in place. I'm not sure if they collect your own stem cells or use other healthy stem cells.

Hope some of this helps. I know the pain is awful, but do not despair. It will get better.