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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@ckscoville

Thanks very much for the recommendations. Actually my Infectious Disease doctor had suggested a change to 7% saline in my nebulizer (from 3%), but my Pulmonary doctor at Mayo wanted to keep it at 3%, saying that he typically only prescribed 7% for Cystic Fibrosis patients.

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Replies to "Thanks very much for the recommendations. Actually my Infectious Disease doctor had suggested a change to..."
Sue, Volunteer Mentor | @sueinmn | Aug 8, 2020

@ckscoville Here is a link you might like to share that talks about the use of higher percentage saline in non-CF patients, and the potential effect on MAC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6688147/

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Terri Martin, Volunteer Mentor | @windwalker | Aug 12, 2020

There was a study done at NIH that proved it took the full 7% saline to successfully kill mycobacterium avium complex. I have posted it here in the past for folks to print it out to show their doctors. It is a chart that shows what % of saline kills a specific organism. I know Mayo doctors to be among the the very best because I have been going to Mayo for treatment since 2013. The pulmonologist that turned my mac negative since 2014 retired last year. He did not use the typical Big 3 antibiotics, but rather something less toxic but for a longer period of time. It worked, but when I discussed it with the pulmonologist that replaced him, she disagreed with it. So you see, drs can have varying views. I will see if I can locate that chart for you.

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