← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@lindam272

@ckscoville I definitely wouldn't wait that long. I have atypical cystic fibrosis, MAC and bronchiectasis. My CF doc prescribed my vest and Dornase Alpha Pulmozyme inhalation solution for me after my last major exacerbation in 2018. I haven't had to be hospitalized since then. The Pulmozyme is expensive - over $4,000/month. I'm fortunate that my insurance and supplemental insurance covers it. Definitely something to ask about. Linda

Jump to this post


Replies to "@ckscoville I definitely wouldn't wait that long. I have atypical cystic fibrosis, MAC and bronchiectasis. My..."

@lindam272 I have 1 CF gene and have had problems with asthma allergys etc all my life, and possibly why I had MAC. Those genes have got to go!