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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@sueinmn

@ckscoville I think in you shoes, I would address the issue of thick mucus with my ID doc through the patient portal and not wait another month for my appointment. There must be some way to thin the mucus so you can be more comfortable. Just my opinion.
Sie

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Replies to "@ckscoville I think in you shoes, I would address the issue of thick mucus with my..."
lindam272 | @lindam272 | Aug 1, 2020

@ckscoville I definitely wouldn't wait that long. I have atypical cystic fibrosis, MAC and bronchiectasis. My CF doc prescribed my vest and Dornase Alpha Pulmozyme inhalation solution for me after my last major exacerbation in 2018. I haven't had to be hospitalized since then. The Pulmozyme is expensive - over $4,000/month. I'm fortunate that my insurance and supplemental insurance covers it. Definitely something to ask about. Linda

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