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RSD/CRPS

Brain & Nervous System | Last Active: Sep 25 9:25pm | Replies (121)

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@rwinney

@rivermaya34 Whoaaaaaa girl, I am EXHAUSTED reading about your daily routine and activities. 😰🤪 You most definitely are a motivated person (as you should be at your age) and one might think you are a bit of a perfectionist, over achiever, and go-getter. Am I right??? It takes one to know one, and I relate big time! 😉

Your recent post speaks of arm amputation. I'm so sorry that you experience such pain and frustration. I also experience chronic pain and went through hell and back. After years of confusion and my conditions building, I became unable to work and declared permanently disabled. I struggled with this especially being a person similar to yourself that had been an over achiever, perfectionist, and go getter. My stuff really hit hard around age 41 and gained steam through my 40's, so I was not as young as you, but still pretty young.

Chronic conditions and diagnoses suck, and I know first hand that it takes more than just temporary relief and band-aides, it takes strength, courage and tenacity, which I feel you possess. I whole heartedly believe you are a perfect student for the Mayo Clinic Pain Rehabilitation Center (PRC). It is 100% built for you and your conditions line up with the teachings. This program saved me. No, it did not cure me (that'll never happen), it did not remove all of my chronic pain and symptoms completely, but it sure as hell gave me a foundation to live the rest of my life in chronic pain and know how best to manage it both physically and mentally, and reduce my symptoms.

Here's a video from Mayo Clinic's Dr. Sletten who heads up and teaches the rehab program. He and his team are amazing at what they do. They changed my perspective and provided me the tools to get a handle on living this way, and to achieve a better quality of life. I was in class with people ages 18 to 71 which I think attests to the fact that PRC is where it's at!
https://www.youtube.com/watch?v=8defN4iIbho
My heart tells me that you would succeed in a more healthy manor if you learned how to put yourself and your needs first and manage properly. I want that for you. Do you mind letting me know your thoughts after watching the video?

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Replies to "@rivermaya34 Whoaaaaaa girl, I am EXHAUSTED reading about your daily routine and activities. 😰🤪 You most..."

Haha yeah, I definitely stay busy. I'm a pretty ambitious individual, which can be unfortunate for my health at times. But, serving others and keeping physically active (within reason) keeps me out of trouble and feeling human. It also maintains my perspective and allows for me to reach and encourage others along the way. I'm sooooo thankful for that! All of the above vocabulary above you used to describe me are undeniably accurate lol and like you say, "takes one to know one." 🙂 I'm so sorry you have been suffering with such enormous pain and frustrations, but I am exceedingly thankful that you have crossed my path here. Your story has encouraged me more than you know, and for that I am ETERNALLY thankful!!! Yes, I agree with your assumptions in that I believe the program would greatly benefit me, and I intend to seek it out. I'll be talking with my doctors this upcoming week and see what they say, they are super supportive and proactive. I was almost in tears watching the video link, I'm pretty sure my mouth was wide open in disbelief that someone could pinpoint so exact all of the grievances I've (and so many others) been experiencing without solid answer or people looking at me with crazy stares etc. It all makes so much sense now...I feel even more hopeful now because I have information to now share with friends and family to educate and encourage them also. THANK YOU. You are a wonderful human being.