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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi Pam! What did you think of the prednisone? Did you find that it helped you? I have a bottle of it myself to keep on hand if I feel I ever need to be on it. I use it approx once a year. I love the stuff; too bad it isn't good for us long term. I only stay on it a week, and it gets rid of all inflammation, even my arthritis in my hands. It makes me feel energetic and healthy. Using it short term shouldn't be so disconcerting; it is the long term use that starts to destroy organs like your liver.
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The prednisone really did not make a dent on my breathlessness but glad I tried it, as it is supposed to reduce inflammation. I did send in a sputum sample last week and just today got the news that I have a bacteria called "Achromobacter". This may very well be the culprit. Has anyone out there been diagnosed with this? The best drug to treat this is Bactrim from what I understand. If anyone has anything to offer in the way of experience or information on this bacteria, please let me know. Thanks, Pam