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I called the Mayo Clinic in Fl. Told them I have CRPS. They were able to direct me to the University of North Carolina to The anesthesiologist/pain management department. Check your teaching universities.
I strongly encourage you to find an anesthesiologist/pain management doctor rather than fooling around with just a “pain management physician”. I went to a pain management physician and he didn’t even spend five minutes with me before announcing he was giving me a Botox injection. He just herd the patients in and out. No questions asked. I left without the injection. I wanted to know what it would do to me. Do your homework. Botox weakens the muscle.
I have used a Sprint implant for 60 days and it helped immensely. It’s not a permanent “fix”. It was used to see if they could get the communication going in the nerves plus I got some relief. This company is out of Beachwood Ohio. Call them. I am currently waiting to get a Boston scientific implant into my spine.
Remember one of the best things you can do for CRPS is to make sure you get a good nights sleep. The other thing that I am being told is keep it moving. I’m working on it. Use a pool of you are able. Lose weight, too.
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On Jan 7, 2022, at 12:20 PM, Mayo Clinic Connect wrote:
@grannyzoo I could not agree more that one of the best things to do for CRPS is get a good night sleep, and keep moving. Yes! And eating a proper diet to be proactive for your body to function healthier. Physical fitness, cardio, emotional and behavioral strategies and support, plus reducing or omitting chemicals and injections that affect nerves tissues and cells further causing distress to our bodies.
Whew, it's a package deal managing chronic pain. Great suggestions @grannyzoo!
I'm slow in reading this-- but was hoping you could give more information about the Spring implant? My 17yr old daughter was diagnosed with CRPS after having surgery for TOS (that came about from competitive swimming).. she has been doing Ketamine every 9-10wks and that helps to give her somewhat of a life(she was able to pass school last year- but just barely- and we are again struggling with normal school- chronic pain really stinks)-- so Ketamine truly does lower the pain overall, but we would love to help lower it more. Her Anesthesiologist at VCU used to work for Mayo and he is one of the top doctors doing Sprint-- but we have been hesitant b/c he wants to put it in where she had TOS surgery and that area is so easily flared and when a ganglion stellate block was done in that area, it only made things worse.... So after the 60days with the Sprint, did the help in pain then stop? How low was your pain (on a 10scale)? Thanks for any help!
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Thank you kindly @grannyzoo !! I live in SC and my brother lives in NC, so the trip would not be far for me if I ended up going there. MUSC is here in Charleston, a top-notch teaching hospital. I will likely reach out to them for any options they might have...thank you. Moving is definitely the key, some days are a lot harder than others, though. But, the sun's still up'n shining, so what do I have to worry about? 🙂