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Hey @rwinney, so glad to meet you! I've been thru hell'n'back 10x over by this point in my life, so honestly these are just newly colored flames of the fire. 9/10 days I do pretty ok with keeping my head up and smiling. Encouragement is one of my gifts, and being an empathetic peacemaker at heart, I truly enjoy nothing more than uplifting others. That being said, I am only human and do suffer a number of 'bad days' that I wrestle with quietly. Over the course of many years, I've slowly drawn back on certain activities and recently at work, allowing few to step in and help as needed. I stay pretty busy, though - working full time, full time college student (I'm in my 4th year of BBS, pursuing MBA after), hunting on the weekends, I teach 5th grade Sunday school and coach 1st/2nd grade basketball, learning new languages on the side and pursuing multiple other closet hobbies in my 'spare' time. I try to go for a walk or run if I feel up to it, and I eagerly desire to return to the ice. My daily routine depends on the day, honestly...usually working 6-4 then come home and get plugged into school or whatever else. I don't sleep well most nights, so pretty steadily exhausted all the time. But, I'm grateful to wake up each day with new mercies on my side and adventures that await! 🙂
Replies to "Hey @rwinney, so glad to meet you! I've been thru hell'n'back 10x over by this point..."
@rivermaya34
Here is a testimonial on PRC along with a link for the program so you can get a better understanding:
https://www.practicalpainmanagement.com/patient/resources/pain-self-management/time-mayo-clinic-pain-rehabilitation-center
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
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@rivermaya34 Whoaaaaaa girl, I am EXHAUSTED reading about your daily routine and activities. 😰🤪 You most definitely are a motivated person (as you should be at your age) and one might think you are a bit of a perfectionist, over achiever, and go-getter. Am I right??? It takes one to know one, and I relate big time! 😉
Your recent post speaks of arm amputation. I'm so sorry that you experience such pain and frustration. I also experience chronic pain and went through hell and back. After years of confusion and my conditions building, I became unable to work and declared permanently disabled. I struggled with this especially being a person similar to yourself that had been an over achiever, perfectionist, and go getter. My stuff really hit hard around age 41 and gained steam through my 40's, so I was not as young as you, but still pretty young.
Chronic conditions and diagnoses suck, and I know first hand that it takes more than just temporary relief and band-aides, it takes strength, courage and tenacity, which I feel you possess. I whole heartedly believe you are a perfect student for the Mayo Clinic Pain Rehabilitation Center (PRC). It is 100% built for you and your conditions line up with the teachings. This program saved me. No, it did not cure me (that'll never happen), it did not remove all of my chronic pain and symptoms completely, but it sure as hell gave me a foundation to live the rest of my life in chronic pain and know how best to manage it both physically and mentally, and reduce my symptoms.
Here's a video from Mayo Clinic's Dr. Sletten who heads up and teaches the rehab program. He and his team are amazing at what they do. They changed my perspective and provided me the tools to get a handle on living this way, and to achieve a better quality of life. I was in class with people ages 18 to 71 which I think attests to the fact that PRC is where it's at!
https://www.youtube.com/watch?v=8defN4iIbho
My heart tells me that you would succeed in a more healthy manor if you learned how to put yourself and your needs first and manage properly. I want that for you. Do you mind letting me know your thoughts after watching the video?