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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 18 hours ago | Replies (6026)

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@kwfinnie

thankyou for an overview of your experiences. You gave me insight to alternatives for me. I have not been diagnosed with any specific disease for my neuropathy. I was just told that there was not anything that could be done. That I had to live with it. Are you losing balance. I am very unsure on my feet and the posibility of a serious fall is frightening. May God bless you and keep you. Kathy

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Replies to "thankyou for an overview of your experiences. You gave me insight to alternatives for me. I..."

@kwfinnie @fredamm I wish a medication could be found to relieve the pain in my feet and ankles. Actually, instead of 7-9 pain pre IVig, I don't really notice the pain. It's there, and some things trigger it, like standing still, driving and sitting down, which seems kinda weird, but after sitting for a while, the pain decreases.

I do have balance problems, and sometimes I get dizzy. If I don't take action, I'd pass out. The balance tends to be when I stand up and turn. And I'd be in trouble if I had to do a sobriety test like you see on Cops. I have at this point mild autonomic neuropathy.

Some of the balance and dizziness could be related to my heart. I recently did a 7 day monitor, and it registered 1620 SVT episodes, the longest one lasting 26 minutes. It's a condition that causes tachycardia.

Time to have our nightly couples devotion, so I need to stop. The Lord bless you, as well.

Jim