@yellowdoggirl You're welcome. No worries at all, I totally get it. Here, let me help you out with a video from Mayo Clinic's Dr. Sletten who explains CSS clearly. It's amazing to watch and learn because you will generally not find doctors sitting with patients discussing CSS. Reason being is because doctors stay in their specialist lanes and may not have time, care, concern or knowledge about this chronic pain syndrome let alone how to treat it for a lifetime.

Here you go...
https://youtu.be/vJNhdnSK3WQ

I will be curious to hear back from you on whether any of it lines up with your challenges. Do you mind letting me know?