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Significant osteoporosis: I need a bone plan
Osteoporosis & Bone Health | Last Active: Dec 10, 2022 | Replies (88)Comment receiving replies
Just as an example of what can go wrong with bone health medications, I was put on Prolia for osteoporosis and got rashes and severe bone pain after both of the two injections I received. Switched to Tymlos and wasn't monitored as often as I should have been after the first four months resulting in hypercalcemia, hospitalized and told I could have died as bad as the blood chemistry was. After that I was given an infusion of Reclast that resulted in severe body aching, swollen, red, non-functional hand and migraines for 5 days. After all this, I'm just trying to eat well, take calcium and vitamin D supplements to maintain any bone health. A previous bone health doctor mentioned putting me on Forteo but it never happened.
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I am avoiding Prolia because of the drop in bone density when you go off. I think a lot of your problems could have been averted with better advice on calcium intake, better monitoring, and starting at a lower dose. I started Tymlos at 2 out of 8 clicks of the pen and am still not up to full dose and my doc is fine with it. Ditto Reclast. My doc will give me only 1mg and test to see if that is working, after my Tymlos.
I went 14 years with osteoporosis, with no osteoporotic fractures, but when I did finally fracture it was 3 vertebrae and so painful and for a few months I lost my independence. It was from one stupid movement. Just make sure you don't wait as long as I did.
It sounds like you need a better doctor, rather than avoiding meds. But I don't know your DEXA scores. If insurance was paying for Tymlos I assume not good.