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RSD/CRPS

Brain & Nervous System | Last Active: Apr 26, 2023 | Replies (118)

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@rwinney

@rivermaya34 Hey Karen, I'm Rachel, it's nice to meet you.
Thank you @johnbishop for bringing me in to the conversation. Karen, you ask a great question...how does one live daily without losing sanity? I've asked myself that question many days.

I took a quick peek at your bio and some of your posts. Wow, girl! You impress me. I admire your positivity and strength. Setting your titled diagnoses aside, how have you currently been managing your circumstances? What does your daily routine look like?

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Replies to "@rivermaya34 Hey Karen, I'm Rachel, it's nice to meet you. Thank you @johnbishop for bringing me..."

Hey @rwinney, so glad to meet you! I've been thru hell'n'back 10x over by this point in my life, so honestly these are just newly colored flames of the fire. 9/10 days I do pretty ok with keeping my head up and smiling. Encouragement is one of my gifts, and being an empathetic peacemaker at heart, I truly enjoy nothing more than uplifting others. That being said, I am only human and do suffer a number of 'bad days' that I wrestle with quietly. Over the course of many years, I've slowly drawn back on certain activities and recently at work, allowing few to step in and help as needed. I stay pretty busy, though - working full time, full time college student (I'm in my 4th year of BBS, pursuing MBA after), hunting on the weekends, I teach 5th grade Sunday school and coach 1st/2nd grade basketball, learning new languages on the side and pursuing multiple other closet hobbies in my 'spare' time. I try to go for a walk or run if I feel up to it, and I eagerly desire to return to the ice. My daily routine depends on the day, honestly...usually working 6-4 then come home and get plugged into school or whatever else. I don't sleep well most nights, so pretty steadily exhausted all the time. But, I'm grateful to wake up each day with new mercies on my side and adventures that await! 🙂