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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@centre

Hi- just want to chime in that where you have sensory changes but not muscle nerve changes in your legs and feet, I really, really recommend asking your PCP for a PT referral for “Eval and Treat” and ask the PT to set you up with a Home Exercise Program for strengthening, balance, and walking. My experience is that it feels so weird when up and about on your feet, that you start doing less and less and you WILL lose muscle strength which will affect your mobility and endurance. I also find that doing the daily home program helps me structure my day and helps me keep my “fright” about having PN in check, reading John and the other volunteers calm comments really helps, and reading the PN foundation site info helps- all by reminding me that I am working on this unwelcome diagnosis in a positive way.

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Replies to "Hi- just want to chime in that where you have sensory changes but not muscle nerve..."

Thank you for your response. I couldn't agree with you more on keeping active. Before the pandemic I played pickle ball twice a week, did Tai Chi once a week and rode by bike. Like all of us things changed a few years ago. Now, me and U-tube exercise together, I do weight exercises (not more than 8 lbs as I am a light weight), do 20 minutes of walking cardio and practice my Tai chi, In nice weather my husband and I still went on bike trips, but right now that is out of the question as we don't have snow tires on our bikes....lol

I was getting into a pretty good daily routine with my actives. However, things kept happening to me that prevented me from exercising, but once I got better, I would rebuild myself back up again. It can take awhile to get motivated again, but I would eventually get back into my routine. At the beginning of Dec I had squamous cells below my eye and had MOE'S surgery to remove it and they had to do a skin graft. I was unable to lift anything heavy or bend over for several weeks. I have to admit that each time I have to stop my exercises it takes me longer to get going again. I could have started doing my exercises again about a week earlier than I did, but I will blame it on Christmas 🙂

After Christmas was over I couldn't procrastinate any longer. Being 69 my balance isn't like it was when I was 30 but still pretty good. Tai Chi has a lot of moves that require balance and I was able to do them. That is one reason I noticed that the neuropathy in my feet was making my balance bad, because I was having trouble doing those moves. Now, when I do Tai Chi I have to concentrate a lot harder to do the balancing. It isn't like it used to be but I think the Tai Chi is helping my stability get a little better.

Good grief.....I wasn't planning on writing so much and I am sure it is more than anyone wanted to know. Anyways, thank you for reminding me of the importance of staying active and even though I have started my routine again you did give me more motivation to up my game and keep moving forward, doing the best I can do.

Maureen