← Return to Anyone experience Post-Covid Inflammatory Arthritis?

Comment receiving replies

I likewise developed inflammatory arthritis (axial spondyloarthritis) post Covid (it is believed). For the most part, I was asymptomatic and therefore never tested for COVID. Some 1-2 months later, developed unexplained excruciating muscular-skeletal myalgia in lower back, hips, mid back region and shoulders. No one could explain why? My CRP levels are out the roof, indicating severe inflammatory response!
I would like to be seen by the Mayo Clinic's Long Haulers group, but was told that since I was never tested for COVID, I would not qualify!!
And yet, research shows that approximately 19% of long haulers were assymptomatic for COVID (Like ME!!). Would still really like to get into the clinic. Any suggestions?

Jump to this post

Replies to "I likewise developed inflammatory arthritis (axial spondyloarthritis) post Covid (it is believed). For the most part,..."

Welcome @gacko, I'm hoping someone with experience in the COVID long haulers group can share it with you. I did find an upcoming virtual community forum that you might find beneficial.

Mayo Clinic Health System to host virtual community forum, ‘The COVID-19 Pandemic: Where Do We Go From Here’: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-health-system-to-host-virtual-community-forum-the-covid-19-pandemic-where-do-we-go-from-here/

Can you have an antibody or serology test to see if you have had a past infection?
-- https://www.cdc.gov/coronavirus/2019-ncov/testing/serology-overview.html

Thanks for letting me know I am not only one got some crazy muscle stuff now, especially for someone that is competitive tennis player and runner right prior to covid 3 months ago. I am not even sure how you join into the Covid mayo clinic program, etc. as you mentioned, but I hope they also allow people that were not tested positive, etc. to join. Once I had the 104 fever and could barely walk, I was in the ER hospital pretty quick and they tested quickly for Covid. After that all the issues started happening with muscles than covid pneumonia. Hope we can all find the solutions to fix the post covid inflammatory response in the body. That is the main issue is the system is now tricked into thinking something is wrong all the time. It is similar to having Mast Cell Activation Syndrome, which I have been studying. I got on an H1 and H2 blocker to try per DrBeen.com youtube channel says might help. I will keep my eyes open for you to see anything that helps me I will pass it along.