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RSD/CRPS

Brain & Nervous System | Last Active: Apr 26, 2023 | Replies (118)

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@johnbishop

@rivermaya34, So sorry to hear about the new diagnosis and the pain you are having. I know it has to be really difficult when you start thinking about amputation. I have read about phantom pain in missing limbs in stories from combat veterans. I'm wondering if you might find a discussion started by @rwinney helpful. She may also have some suggestions for you.

Mayo Pain Rehabilitation Program: What's your experience?: https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/

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Replies to "@rivermaya34, So sorry to hear about the new diagnosis and the pain you are having. I..."

Thanks @johnbishop for the suggestion/connection, and the encouragement too... I once worked at a prosthetic company for several years and saw quite a lot there. My best friend is an amputee and I am very well aware of his daily struggles, and so I didn't make that statement from yesterday lightly. I just feel like here lately I'm 'losing it' and that's exactly the opposite of what I desire to happen. I've been doing pretty well to counter it for a long while now, but man there've been just so many incredibly overly challenging days here lately in regards to pain, and unfortunately I can't separate myself from my own body as I'd like to often times...what's the old saying, 'whatever doesn't kill ya only makes ya stronger?' ... lol aye yaye aye smh. I'll check that discussion board out!