← Return to Lung Cancer Support Group: Looking for support from others
DiscussionLung Cancer Support Group: Looking for support from others
Lung Cancer | Last Active: Mar 2 9:35am | Replies (47)Comment receiving replies
Replies to "Julliet- Hello again- Good morning. It's been a while since we have spoken. How are you..."
I join a once a month Zoom lung cancer support group through John Stoddard in Des Moines hosted by a Clinical Oncology Social Worker. Being able to talk to others about their updates, issues, etc. has helped me so much. We are able to help each other and support each other. The social worker arranges for guests if we have special concerns. She had a dietitian one month who answered a lot of our questions. I’m not much of a text, email, social media person so talking on Zoom has been a huge support to me. When I saw there were groups for other cancers through Mayo I wanted to make sure I wasn’t missing out on one for lung cancer.
Similar to @carlies I am very interested in help with diet, probiotics, and especially the latest research on the micro biome and cancer. During treatment I know you had to be very careful what to take not to interfere with chemo and radiation so for @carlies it may be different than what I need to do now after those treatments.
Merry, I’ve been hanging in there. Been suffering from repeated infections so have been on 4 rounds of antibiotics and ended in the ER with an allergic reaction to one. Went to an integrated MD and he is helping me with getting my immune system up and improve my gut health from chemo and all the antibiotics. Just had scans January 4th. They were a huge stress relief as previous scans had shown 5 new micro nodules but this scan they were gone. I do have another hydropneumothorax but overall the scans were great news. Thanks for asking.
I haven’t kept up with posts lately. How are you doing?
Juliette
Wow! What can I do, if anything, about thinning hair? I know you will say it is the least of my worries, and you are right! I just have had no one address this problem. Is it only mine? I know about wigs and wiglettes, but is there a product that may restore hair to even near normal health?
May I interject? I would like to see information re: abating appetite loss and nausea during and after treatment. I’ve read lots on adding probiotics, glutamine and even fish oil. It would be nice to have affirmation. It would also be nice to be given beneficial options or suggestions other than ‘take your anti nausea meds’. IMP yes they can help, but they do nothing to SOLVE the problem. They are ‘band aids’. Sorry to sound frustrated, but I am! There is so much information out there and there has to be better options/solutions~. Cheers.