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← Return to In shock after MAC diagnosis
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I tried toby more than once -- could take it for maybe two weeks and then breathing problems happened for me. It was scary. I went up to Mayo's before starting it because that's what Dr Moua wanted me to do so they could try it and be sure I would not have that problem. I did fine up there but of course it was only one time for about 20 minutes. Yes, I did saline and albuterol prior to using it each day (that's what I was told to do also) but eventually, it was just too scary. They had me stop it and I've had no replacement. Would love to find something else that might kill pseudomonas. That's my big problem.
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Hi @auntnanny and @dc1950, it is October now. How are you both now? Do you stll have the Pseudomonas?
i've just been diagnosed with it. Don't know what I will be treated with yet. Was on the MAC meds (Rifampicin, Clofazimine, Arikayce, Ethambutol, Azithromycin) for 4 years to get rid of an Intracellulare that wouldn't leave,
A bit surprised and have only been off the meds for MAC for a few months -- wasn't expecting Pseudomonas infection. This feels even tougher, really. Very tired -- even without any meds yet --and cough a lot with more of a liquid feeling in my lungs,
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Thank you for responding. Dr Moua is your Pulmonologist, right? Did you ever see an Infectious Disease Dr? I was thinking of trying an ID doc.