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← Return to In shock after MAC diagnosis
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MAC & Bronchiectasis | Last Active: Nov 1, 2022 | Replies (136)
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Hello. I am just finishing my first 28 days of Tobramycin and I feel like I cough more now than before also. Any type of exertion causes me to cough. I plan on getting a second opinion. I have a question for anyone taking Tobramycin thru a nebulizer. Do you do albuterol and sodium chloride thru the nebulizer before taking the Tobramycin? That’s how I was told to take it and to wash and /or change my mouthpiece between. Can anyone else tell me the steps you take? Thanks! Donna
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I tried toby more than once -- could take it for maybe two weeks and then breathing problems happened for me. It was scary. I went up to Mayo's before starting it because that's what Dr Moua wanted me to do so they could try it and be sure I would not have that problem. I did fine up there but of course it was only one time for about 20 minutes. Yes, I did saline and albuterol prior to using it each day (that's what I was told to do also) but eventually, it was just too scary. They had me stop it and I've had no replacement. Would love to find something else that might kill pseudomonas. That's my big problem.