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rabbit10 (@rabbit10)

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 13 hours ago | Replies (2543)

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@maureenb

Thank you John for your reply and the links you posted. I will take a look at the information.

I have an appointment with my nephrologist on Feb 1st and my neurologist on Feb 4th. I will be asking them both if there is a connection between my CKD and my peripheral neuropathy. I will post if I find out anything interesting as it my be helpful to other people.

Maureen

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Replies to "Thank you John for your reply and the links you posted. I will take a look..."

Hi- just want to chime in that where you have sensory changes but not muscle nerve changes in your legs and feet, I really, really recommend asking your PCP for a PT referral for “Eval and Treat” and ask the PT to set you up with a Home Exercise Program for strengthening, balance, and walking. My experience is that it feels so weird when up and about on your feet, that you start doing less and less and you WILL lose muscle strength which will affect your mobility and endurance. I also find that doing the daily home program helps me structure my day and helps me keep my “fright” about having PN in check, reading John and the other volunteers calm comments really helps, and reading the PN foundation site info helps- all by reminding me that I am working on this unwelcome diagnosis in a positive way.

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