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Anonymous (@anon37227499)

RSD CRPS

Brain & Nervous System | Last Active: Jun 29 10:50pm | Replies (49)

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@rivermaya34

Anyone here experienced amputation due to CRPS (RSD)? I've been pleading for 2 years now someone rip my arm off… I've heard there is increased quality of life afterward and minor to no residual/phantom pain…any truth to this? How does one live with daily without losing sanity? Help!

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Replies to "Anyone here experienced amputation due to CRPS (RSD)? I've been pleading for 2 years now someone..."

@rivermaya34, So sorry to hear about the new diagnosis and the pain you are having. I know it has to be really difficult when you start thinking about amputation. I have read about phantom pain in missing limbs in stories from combat veterans. I'm wondering if you might find a discussion started by @rwinney helpful. She may also have some suggestions for you.

Mayo Pain Rehabilitation Program: What's your experience?: https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/

@rivermaya34 Hey Karen, I'm Rachel, it's nice to meet you.
Thank you @johnbishop for bringing me in to the conversation. Karen, you ask a great question…how does one live daily without losing sanity? I've asked myself that question many days.

I took a quick peek at your bio and some of your posts. Wow, girl! You impress me. I admire your positivity and strength. Setting your titled diagnoses aside, how have you currently been managing your circumstances? What does your daily routine look like?

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