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Replies to "I just got diagnosed today with CRPS II. I also have idiopathic SFN and ALS-4. All..."
Brain & Nervous System | Last Active: Sep 25 9:25pm | Replies (121)
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Replies to "I just got diagnosed today with CRPS II. I also have idiopathic SFN and ALS-4. All..."
I called the Mayo Clinic in Fl. Told them I have CRPS. They were able to direct me to the University of North Carolina to The anesthesiologist/pain management department. Check your teaching universities.
I strongly encourage you to find an anesthesiologist/pain management doctor rather than fooling around with just a “pain management physician”. I went to a pain management physician and he didn’t even spend five minutes with me before announcing he was giving me a Botox injection. He just herd the patients in and out. No questions asked. I left without the injection. I wanted to know what it would do to me. Do your homework. Botox weakens the muscle.
I have used a Sprint implant for 60 days and it helped immensely. It’s not a permanent “fix”. It was used to see if they could get the communication going in the nerves plus I got some relief. This company is out of Beachwood Ohio. Call them. I am currently waiting to get a Boston scientific implant into my spine.
Remember one of the best things you can do for CRPS is to make sure you get a good nights sleep. The other thing that I am being told is keep it moving. I’m working on it. Use a pool of you are able. Lose weight, too.