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How do you not let a brain tumor take over your life?
Brain Tumor | Last Active: Jan 13, 2022 | Replies (20)Comment receiving replies
Susan, welcome! I'm grateful that you re-animated this discussion where @lorena1963 asked such an important question "How do you not let a brain tumor take over your life?" - a question one asks at the time of diagnosis, through treatment and with watch and wait.
I'd also like to invite old and new members living with brain timor like @bobhills @hinklda @bjh369 @nancye3 @jkenser @amkaloha @saylor479 @pleu @mepowers @mgreen616 @gilliland1102 @kristin1990 to join the conversation.
While we wait for others to join in, Susan, can you tell me a bit more about you? What type of brain tumor did you have? What treatments? Are you a journaler (is that a word)?
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Thank you! I discovered how much I love to write quite by accident. I was emailing family and friends to share all of the wild ride details and emotions I was experiencing after my initial diagnosis in 2019. A pineal tumor (name: Pinena) was blocking the flow of cerebral spinal fluid, causing obstructive hydrocephalus.
Brilliant surgeons performed a miracle surgery called an endoscopic 3rd ventriculostomy at Mayo in Phoenix. They gave me back my life, but the path to the tumor was too deep and dangerous to reach during that life saving surgery. Now, the docs Watch it with MRI's and I Wait it with gratitude, writing (journaler for sure!), patience, anxiety and every emotion and feeling in between!