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Liver neuroendocrine tumors: I would like to talk with others
Neuroendocrine Tumors (NETs) | Last Active: Jan 9, 2022 | Replies (6)Comment receiving replies
I wanted to invite you to a NETs support group meeting this Thursday, Jan. 6, from 5:30 to 7 EST. I think you will find this group to be very supportive. This is a virtual meeting, on Zoom, so folks with NETs from all over the country attend. Dr. Jason Star will be speaking. Dr. Star is a NET specialist from Mayo Clinic in Jacksonville, FL
Please register in advance for this meeting since space is limited to 50 participants:
https://mchealth.zoom.us/meeting/register/vpUqdeGvrzksvBPx9kW8518Rtp8_vzMoEg
After registering, you will receive a confirmation email containing information about joining the meeting.
Replies to "@felo I wanted to invite you to a NETs support group meeting this Thursday, Jan. 6,..."
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I was diagnosed with Stage 4 midgut NETs in Sept. 2021. I have metastses in the liver ( 10 % tumor burden), bones, pleura and lymph nodes. Being followed at Fox Chase Cancer Center in Phila. Currently being treated with Octreotide LAR. Have pain and discomfort in epigastric primarily.