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Dysautonomia studies and ANS issues

Brain & Nervous System | Last Active: Jan 5, 2022 | Replies (6)
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@johnbishop

Hello @bcrazy1, Welcome to Connect. It is really good news to hear that Vanderbilt Autonomic Clinic was able help diagnose and treat you. Do you mind sharing a little more about the treatment that helped you?

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Replies to "Hello @bcrazy1, Welcome to Connect. It is really good news to hear that Vanderbilt Autonomic Clinic..."
bcrazy1 | @bcrazy1 | Jan 5, 2022

Sure! It was a simple medication. Methyldopa. It worked incredibly well for 7 years. Then they quit making it. I’m currently on clonidine which helps but not as well as methyldopa did. I have to agree with OP that this is very disabling. Most people think about POTS as a nuisance. I’ve been basically bedridden since stopping methyldopa in April 2021. I’m hoping the clonidine is going to level out at some point, otherwise it will be on to the next medication. HyperPOTS is WAY under studied, as is Autonomic Dysfunction in general.

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