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Need Patients' Experience with Mayo Clinic. Is it worth it?
Visiting Mayo Clinic | Last Active: Apr 11 11:25am | Replies (116)Comment receiving replies
I went to Mayo Rochester. Eyesight in left eye worsened and had lower limb issues. I was with neurologists at Michigan State University, had 4 mri’s and was told no tumor, but no one could figure out why my optic nerve area was swollen. They sent me to Mayo. I was there a week and was diagnosed with a brain tumor, optic nerve sheath meningioma. Also did my treatment there, proton radiation for 6 weeks. Making my 4th trip to Rochester Monday for my three month checkup! Well worth it!
Replies to "I went to Mayo Rochester. Eyesight in left eye worsened and had lower limb issues. I..."
@hamillc2, I think members in the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/) would appreciate getting to know you. I'm confident your experience would give comfort to people new to diagnosis. Here are a few discussions you may wish to join. See especially the more recent comments from new-er members.
- How do you not let a brain tumor take over your life? https://connect.mayoclinic.org/discussion/life/
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Does anyone know how en plaque tentorial meningioma would be treated? https://connect.mayoclinic.org/discussion/does-anyone-know-how-an-en-plaque-tentorial-meningioma-would-be-treate/
- Any Optic Nerve Meningioma Patients Who've Had Surgery? https://connect.mayoclinic.org/discussion/optic-nerve-meningioma-patients/
- Meningioma pressing against the optic nerve https://connect.mayoclinic.org/discussion/meningioma-pressing-against-the-optic-nerve/
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@hamillc2 Wow, what a trip it will be, to go in for your checkup! Your story is inspiring, and reminds us to never give up looking for the root of our problems!
Ginger