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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@garry Sorry to tell you, but it kind of does! I never had a radiologist call me at home till we moved to Tennessee for a hot second. This Dr. called me and told me to get right to my primary for further evaluation as there was something very suspicious on my X-ray. (Which was taken for a back issue). I calmed the poor man down and told him “No worries, I have nodular MAC, and my doctor is well aware.” I was actually touched by the fact he was so concerned and had called me! So I guess it kind of shows up as “something.” A CT scan will confirm MAC.
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@irene5 You are right. It was an xray that alerted my primary's partner that something was there, followed by a CT that confirmed bronchiectasis and "suspected MAC" which was confirmed by sputum culture. It was severe enough that the pulmonologist started treatment while waiting for sensitivity tests to come back, which confirmed his choice. It was also a repeat CT that showed enough improvement to quit the meds and go with just 7% saline to keep the remaining infection under control. Like @unicorn my body became more and more unhappy with the meds over time, especially after 6 months of every day!