Connect
← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hi I went for years not knowing what I had. Finally a young intern sent me to a specialist and he did at lung test. After that I went on 3 drugs for 6 months. That was 5 years ago. Now I am trying to find some new drugs because the ones I am on are not working. I now have 2 spots on my lungs. I went on an fruit diet. I understood that infection can not live in a normal ph level . So i only ate fruit and vegitables for 6 months lost 30 lbs. Not trying to loose weightjust wanted to eat healthier. I was off all antibiotics for 3 months and now it is back. I believe eatting propperly helped. I was working hard over the three months I was anibiotic free and I got run down.
I have a steam room and a ht tub that I regulary use trying to loosen my chest up. It is not working. Not sure what to do next Garry
Replies to "Hi I went for years not knowing what I had. Finally a young intern sent me..."
Get rid of the steam room and hot tub...loaded with bacteria that causes the disease. Read up on it; you are doing yourself no good.
Connect
@garry I am so sorry for your frustrating situation. Years ago we would say ,”c’est la vie!”. Now” c’est la guerre” seems more appropriate. It is a good idea to loosen that stuff up in order to get it out , but I am sorry to tell you a hot tub is a big no no for MAC patients. Feel free to google that. Hope you feel better soon. No bueno as my daughter says! (Irene5)