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Significant osteoporosis: I need a bone plan
Osteoporosis & Bone Health | Last Active: Dec 10, 2022 | Replies (88)Comment receiving replies
Hello. I sound similar to your case and also @heyhey including Depression. I also need help. I’m -3.6 with a -4 at my L4-5 and hip -2.7.
They recommend tymlos for me but my biggest question is if this grows new bone increases density is it ACTUALLY good and flexible bone?!
If it’s not Strong flexible new Bone, isn’t that More fracture risk even if you have increased bone density?
And even if it is good bone and not at increased fracture risk , once you get off tymlos you have to go on a bisphosphonate type to keep it due to reversibility of the anabolics.
So then, from my understanding, that bone will definitely become
Brittle (because the drug causes the old bone- that’s naturally SUPPOSED TO BE replaced - to stay- but it is old/ brittle and more risk of fractures.
Vitamin k mk-4 of 45 mg / daily used in Japan apparently instead of bisphosphonates can significantly reduce FRACTURE risk even though bone mineral density does not go up. Has anyone done this vitamin K large 45 mg daily? Doctors will think it can cause extra clotting but the functional doctor said no , once we get enough K for clotting it moves on to help bones and other things in the body; and that It doesn’t increases clot risk. So I’d ask for coagulation labs to be safe and ask your doc first.
Re HRT I heard A Osteoporosis speaker say once we’re 5 to 7 years past menopause, our estrogen receptors have basically dried up and it really won’t respond to HRT anymore. 🧐 true?
❤️👉🏼 Would love to hear from those who’ve done Forteo tymlos and vit K 45 mg and reduced fracture risk.
I don’t want to go on Tymlos and then bisph. Or Reclast if I’m just going to end up with higher BMD but more brittle, higher fracture risk bones?!!
Replies to "Hello. I sound similar to your case and also @heyhey including Depression. I also need help...."
In talking about good and flexible bone, I'm wondering if anyone has managed to get a Traebecular Bone Score, TBS, which is a "bone mineral density (BMD) -independent predictor of fracture risk." (A Meta-Analysis of Trabecular Bone Score in Fracture Risk Prediction and Its Relationship to FRAX) in Journal of Bone and Mineral Research, Vol.31, No.5, May 2016, pp940-948). DXA scans measure bone quantity, not bone quality. From what I've read, two bones can have the same DXA score, but, when subjected to pressure, a brittle bone will break, a flexible bone will not.
I read a study in which TBS tests were done on particpants with DXA scores that indicated osteoporosis, but with the TBS test, a significant number were found not to have osteoporosis. I will try to find the reference for that.
It's frustrating because I don't think TBS tests are available in our state.
A good resource for learning about osteoporosis (and other) drugs is Worst Pills, Best Pills. You can get some information for free, but subscription rates are nominal.
Since diagnosis, I'm taking Boron, Vitamin K, Silica and L. Reuteri in addition to Calcium Citrate and Magnesium, Vitamin D, strength train (special exercises for osteoporosis) three times a week and walk three times a week, in addition to using a Whole Body Vibration Exercise machine (with caution). I also take alendronate once a week. I agree, the diagnosis is depressing. I wish I had taken better care of my bones when I was younger! Here's to a fracture free New Year.
Tymlos and Forteo grow quality bone. They do not suppress turnover. In fact, I have been told, even if bone density does not increase, bone quality does. Some of us have painful fractures (despite good deiet, supplements and exercise) after waiting too long. At that point, I did not overthink the decision to try Tymlos!
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I believe it is 45mcg, not mg for that type o Vit K. I have been taking that.